9 Things People Who Have A Silent Disease Want You To Know

I came across this article written by Mandy Velez, and it pretty much sums up what I’d written previously in my posts on what to say or not to say to someone who has cancer.  Cancer can be a silent disease.  Unless the patient is cachexic or has lost his/her hair, it’s not always obvious it’s cancer.

Snoopy

Typical response from well-meaning people when they find out you have a life-threatening disease!

9 Things People Who Have A Silent Disease Want You To Know

1. Just because we don’t look sick doesn’t mean we’re not in pain.

Invisible illnesses affect nearly 1 in 2 people in the U.S. That’s about half of the population that has an ailment that doesn’t manifest itself physically. But that doesn’t mean they don’t exist. Conditions from depression to Crohn’s disease affect the internal organs or brain and are just as painful as any outward conditions. This is why it’s a bad idea to judge someone’s abilities based on their appearance:

2. Our illness may chemically affect our mood and temperament, and no, it’s not just an excuse.

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Brachial Plexus injury #3 – The wild-wild world of elasticated waistbands

I’m back again.  I was going to ration out my posts – believe it or not, these were written some time back – but I’ve decided to post everything I’ve got while I can.  It’s also the only way I can motivate myself to write.  So here are the Brachial Plexus Injury chronicles continued:  I woke up from my mastectomy to find my left arm paralysed, and what follows is my attempt at finding humour and some sort of road map in the nightmarish days that followed …

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I still remember the third day in the hospital, the nurse came in to find I had got my eye mask on.

She immediately thought I’d recovered the use of my left arm back and was suspicious when I told her it was still paralysed [I think it was beyond their experience that someone could lose the use of their arm in a mastectomy].

eyemask

How do you put this on with only one working hand/arm?

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Growing roses on the shit

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When I last posted in June 2015, I had good intentions of posting everyday.  I wanted to play catch-up with my “Best of Breast” news posts (which has now 10 months’ worth of backlog!) and to finish telling what happened post-mastectomy and nerve damage.

But life for me this year was like sitting blindfold on a roller-coaster:  divorce … house-sale … recurrence … more cancer treatments … my cat dying of cancer … having to find somewhere to live … financial pressures … work pressures.

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