Blogs I follow

These are the blogs I currently follow:

http://www.cancertreatmentsresearch.com/ – amazing site set up by a scientist with a PhD in Physics – his wife and mother got cancer.  Well-researched, current and traditional “cures” and well-written, de-mystifying scientific jargon into plain English.  Good for information on Salinomycin [the new wonder cure].

http://www.triplenegative.co.uk/blog/ – I like Claire’s blog because she’s open about her life, her treatments, her strength, her optimism.  Good, clear explanations about the use of immunotherapies and cutting-edge treatments for breast cancer.  Triple-negative breast cancer is one of the toughest to treat. Claire is proof it is treatable.

http://petertrayhurn.blogspot.co.uk/ – Peter Trayhurn is a friend of mine – I met him at Hallwang Clinic.  Peter was diagnosed with Stage 4 colo-rectal cancer about 4 years ago.  Well, he’s still alive and enjoying a good quality of life.  His blog isn’t the easiest to read or follow.  It tends to be a description of what he’s doing, but his optimism, faith and positiveness are infectious.  Give this man a huge round of applause for his intelligence and courage to follow his own wisdom and heart!

http://thinskin.org/ – This is not a cancer blog.  Nora Logan is a liver transplant recipient. She hopes that this blog might provide others with some solace in their darkest moments and the knowledge that they’re really not alone and there will be light at the end of the tunnel.  I like her blog for her honesty and humour and great writing.

https://adventuresinlivingterminallyoptimistic.com/ – another Stage 4 colo-rectal patient.  Written by an oncology researcher (oh, the irony of it all!) who was diagnosed with Stage 4 CRC.  Good explanations of immunotherapies for colo-rectal cancer which are applicable to other types of cancer.  Good if you want systematic explanations and research and studies.

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Recurrence Rollercoaster – #1 – Why Tamoxifen didn’t work for me

Emotional-Roller-Coaster-Ride

So, for newcomers, a quick recap of the back story:  I had a mastectomy, and when I woke up from surgery, discovered my left arm was paralysed.  This had been caused by damage to the brachial plexus nerve that controls the arm.  I had to have further surgery to free the injured nerves.

It took about nine months before I was finally able to lift my left arm, and control it.  It was a dark time, and I remember being in a state of numbness most of the time.  I still look back on that period with a sense of incredulity, and amazement that I got through it.

In those nine months, to give my arm the best chance of healing, my surgeon and I took the decision not to have any active treatment in case they damaged the nerves.  I was also hoping that the treatments I’d had at Hallwang Private Oncology Clinic in Germany would help.

tamoxifen-blocks-estrogen-receptors

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