Recurrence Rollercoaster – #3 The GcMAF route – the Good and the Bad

I’ve had mixed response to my previous post Recurrence Rollercoaster – #2 The GcMAF route with readers posting comments about their experiences with GcMAF, and their opinions on Goleic, Ruggiero and Noakes.

I’m going to keep this as succinct as possible so I can get on with the rest of my saga, so that you can make your own mind up.

The Good

  • We got the (theoretical) full doses of Goleic every day – that was one vial per day.  RRP was £400 per vial
  • Some people received an additional delivery method of suppositories
  • The Goleic injection was administered into the veins feeding the tumours, by guided-ultrasound by a very good radiologist and the creator of Goleic (Prof Ruggiero)
  • We were shown on ultrasound, the instantaneous effect an injection of Goleic had on the creation of nitric oxide by the body.   They scanned the spleen to see monitor the activity and increase in blood supply which was caused by the creation of nitric oxide by the Goleic.  An increase in blood supply was a good response for the macrophages.
  • We were shown another way of administering Goleic, via a nebulizer.
  • As there was no response after my first week, I stayed another week, and managed to negotiate this second week free.
  • We all went back with a goody bag of some Goleic
  • It was a chance to meet other people who were using GcMAF.  There were some very tragic stories of Stage 4 cancer.
  • Prof Ruggiero was charming and professional.  He was a master of the ultrasound.
  • Everyone got scans of their bodies via ultrasound.
  • Switzerland is very beautiful

The Bad

  •  All patients were made to sign a non-disclosure agreement, forbidding us from discussing GcMAF, the clinic etc. including social media and e-mails.  We were told not to discuss our treatments with each other.  All of us found it over-the-top but we signed because we were too afraid not to, afraid that this amazing breakthrough treatment would be withheld from us.  Not even Hallwang Clinic or any other cancer clinic placed such an onerous condition on us.
  • What was more ridiculous is that we were not allowed to keep a copy of the NDA – what were they trying to hide?  Yes, I should have insisted, but I felt very much at the mercy of the clinic.
  • The same research findings were trotted out over and over again during the lectures given to the patients.  It was a very small sample of patients, understandably so, as it was such a new product.  I began to get the impression that we were there, not to be cured, but as guinea pigs, part of a trial, so that they could increase their sample size and get more proof of whether it worked
  • The clinic weren’t interested in the supplements that we were taking.  They had a set list of supplements (Vitamin D, BCAA, MAP, GcMAF yoghurt, and a few others) that they used, and anything else didn’t matter.  This allowed them a get-out clause in the event the Goleic didn’t work: they would claim that our supplements stopped the Goleic from working.
  • There were 3 people who were ex-cancer patients who had been cured using GcMAF.  And that was the crux of the issue:  they were using the old form GcMAF, and not Goleic.
  • There were a few lectures on how Goleic worked, and a lecture on nutrition. That was the extent of the education.
  • The Paleo diet was prescribed.  To give the staff credit, one of the meals was prepared Paleo style and it was very tasty.  There was no interest from the staff in other diets, e.g. the ketogenic diet.  Any attempt to introduce other topics was met with a frosty reception by the staff.
  • I may or may not have got shrinkage.  Prof Ruggerio maintains I did, but my own radiologist and surgeon could find no difference.
  • It wasn’t a proper cancer clinic.  If you had a medical emergency, you would have to go to the nearest Swiss hospital.  It wasn’t a residential clinic either, so we were responsible for finding our own accommodation, and getting to the clinic.
  • At the end of 5 days, I asked for ultrasound measurement and was told I had to wait a full 7 days (i.e. the following Monday) before having another ultrasound.  I was taken aback – it felt like they weren’t interested in my results, and wanted me out just in case it hadn’t worked.  As I’d booked to leave at the weekend, I decided to stay another week just to give Goleic the best chance to work.  This meant cancelling my non-refundable flight.  I was also annoyed because this had not been stated in the website which just said that it was a minimum of one weeks’ treatment, but three weeks was best.  Nowhere did they state that we would only be measured the following week.  Another friend of mine, Claire Grant, got caught out by this, and decided not to stay a second week.
  • They weren’t interested in nagalase test results
  • They weren’t interested in the VDR test for response to GcMAF
  • There were no treatments at the weekend, apart from the yoghurt (or suppositories)

Bear in mind there are many different versions of GcMAF.  Goleic is just one variant.  There are many different manufacturers of GcMAF.

And that there are cancer clinics or integrative doctors who do use GcMAF, but always in conjunction with other treatments (for example the Paracelsus in Switzerland).  My friend, Donna Lockyear, used Goleic, then GcMAF as a monotherapy based on the recommendations of ImmuneBiotech.  She suffered a recurrence.

Finally, I’ll leave you with a review of the clinic and Goleic by Claire Grant, in her outstanding blog:  triplenegative.co.uk:

https://www.triplenegative.co.uk/gcmaf-unfairly-interviewed-or-a-fair-synopsis/

 

 

2 responses

  1. I was never impressed with Goleic and the theories don’t make complete sense. If cancer is a hayflick disease, meaning the cell divisions of part of the immune system has exhausted, GcMAF will not restore the cell division limit. Moreover, talking to the discoverer of GcMAF, he told me on the phone that it doesn’t cure things such as AIDS and herpes. Which GcMAF has been touted to treat.

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