Recurrence Rollercoaster – #2 The GcMAF route (and why you should always kick the tyres of any cure)

A quick re-cap for newcomers to this blog:  I was diagnosed with breast cancer (Stage 1) and spent approximately 1.5 years doing alternative treatments, but the tumour kept growing so I had a mastectomy.  I woke up from the mastectomy to find my left arm paralysed and numb due to  nerve damage (to the brachial plexus) caused by tractioning of the arm during the mastectomy.  I had to have further surgery to release the nerve and because of that, I had no conventional adjuvant treatment.  Nine months after the mastectomy, I finally regained use of my arm.  Nine months after the mastectomy, the cancer recurred.  This is a summary of the options I was exploring after the recurrence.

I’m going to try to update my blog more often.  I regularly check the other cancer blogs I follow and start getting antsy when I don’t see any recent updates.  I’ve also had readers e-mail me with a polite: “How are you?” which reading between the lines, seem to me to also be asking: “are you still alive?”

It must feel as if I am dragging out the whole recurrence and cancer journey story.  But I find it painful sometimes, relieving what happened and the humps and bumps along the way that have derailed me.  Early on I made a choice to write in retrospect so that I would have the wisdom and perspective of distance to give me objectivity.  But doing so has meant that I’ve lost a lot of the immediacy of the moment and have to rely on medical reports on e-mails.  Fortunately I kept very detailed e-mails.

This post is about my visit to a clinic which used a form of GcMAF called Goleic.  The clinic has since been shut down and I do not think that the company who was running the clinic, ImmuneBiotech, is running any more clinics (thank god).  It’s also a post about smoke-and-mirrors, and needing to kick the tyres of any cancer treatment that purports to be a cure.

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Fulda conference #8: New approaches in biological tumour therapy (Dr Florian Schilling)

ChristmasMarket4

The Christmas Market at Fulda

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Florian Schilling presented another talk at the conference:  Leaky-Gut:  Dietary regimen with MAP and GcMAF

Florian Schilling studied pre-clinical medicine at the Ludwig-Maximillian-Universitat Munchen (LMU), and then trained as an alternative practitioner, with his own clinic since 2006, specialising in integrated and complementary tumour therapy, CFS/ME, general regulatory medicine and detoxification.  He has been a lecturer at the Paracelsus College in Munich since 2007, and lectures both in Germany and internationally.

info.schilling@googlemail.com, http://www.nhz-buchloe.de/

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Like Dr Ionnescu, Dr Schilling also emphasised the importance of not using glutathione if there is a tumour.

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GcMAF/Goleic/Bravo Probiotic – a few tips

Yogurt

For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

GcMAF:
GcMAF Cancer:

1.  Method of administration

What’s in this post can be found on the gcmaf.eu website, but I wanted to share a few tips on how to use GcMAF/Goleic:

1.  Goleic can be administered the following ways:

– by injection, intramuscularly into the underarm (see gcmaf.eu website for method).  Another site to consider is near the spleen – check with gcmaf.eu.

– intravenously – you will need to find a sympathetic integrative practitioner who’s willing to do this for you

– by nebuliser.  This is a gizmo that’s used to vaporise medication and is usually used by asthmatics.  Yes, there are macrophages in the alveoli of the lungs, and goleic has the right molecular size to be used in a nebuliser.  The dose is 0.5ml of goleic in 5ml of sterile saline.  You cannot administer GcMAF (the old style) via nebuliser.  You can only do it with goleic.

– by suppository.  This is especially good for people with liver or pelvic mets.  I don’t know how you can get GcMAF/goleic suppositories though – contact gcmaf.eu

2.  Do NOT:

– inject goleic/GcMAF into tumours – you can seed the tumour.

3.  How much?

– GcMAF/goleic may be dose-dependent.  The minimum dose is 0.25ml.  The maximum daily dose is 2.2ml (the whole vial).

4. How often?

– the ideal is daily but not everyone can afford the expense.  Once every 3 to 4 days is acceptable.

2.  GcMAF may not work

I met two people at the Immune Biotech clinic in Lausanne, Switzerland, for whom GcMAF worked.  One had stage 4 ovarian cancer, and the other stage 4 prostate cancer.

These are the only two people whom I know of that it’s worked.  I know that Immune Biotech has published a study on the efficacy of GcMAF, but I’ve heard rumours that these people may have come to the clinic from German cancer clinics, so that it was the German cancer clinic treatments that were working.

I know of more people for whom GcMAF did not work, even though they were injecting 0.5ml every 3 days.

There are a number of reasons why GcMAF may not work:

– Vitamin D Receptor not compatible with GcMAF

– immune system status not able to support optimal macrophage activity, and inhibiting any GcMAF activity.  The only way you can find out your immune status is to get blood tests for it.  And then you have to correct the immune-system imbalance in order to get your macrophages up-and-running.  These tests are not done at the GcMAF clinic.  By immune system tests, I refer to the interleukins, the NK cells, the histamine level, the nitrosamine level.

– GcMAF used as a monotherapy.  Despite what the website states, I do not personally believe that GcMAF can be used on its own as a single therapy.

So if you’re thinking of going to the GcMAF clinic, I suggest you get some references, and speak to these references personally.

Please also check out the Facebook site:  https://www.facebook.com/groups/439553602725764/?fref=ts

3.  Other types of GcMAF

There’s the European version of GcMAF sold by ImmuneBiotech, and the version by Sansei-Mirei in Japan.  A number of people have told me that they use the Japanese version because they believe it’s more stable and more powerful.

4.  Bravo Probiotic

Bravo Probiotic now comes in an Easykit.  It is definitely easier to culture than the old form.

However, there are some disadvantages to this EasyKit:

(i) with the old kit, you could re-culture both compounds and stretch the cultures for longer.  This was not recommended by Bravo Probiotic, but I know people who did this, especially for those who got the old Maf314 cultures.  With the new kit, you cannot re-culture from an existing culture.  This pretty much ties you into buying replacements, whereas with the old kit, you could stretch out the cultures.  So in one fell swoop, Bravo Probiotic have managed to stop people from re-culturing (and sharing cultures) as well as tying you into their programme.

(ii) we don’t know how much colostrum is in the EasyKit.  With the old kit, colostrum had to be added in separately so we knew the exact amount in it.

(iii) the old kit had a third compound of probiotic powder that had to be sprinkled on the final mix.  The EasyKit does not have this third compound – does that mean it’s not as effective?

Wow! Easy Kit – the new, easier, faster way of making Bravo Probiotic!

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

If you’ve read my posts on Bravo Probiotic (aka GcMAF yoghurt, and previously known as Maf314 yoghurt), you’ve probably wondered at the time-consuming process to make it.  I liken the process to musical chairs with yoghurt.

https://bisforbananascisforcancer.wordpress.com/2013/09/04/supplement-gcmaf-yoghurt-with-thanks-to-peter-trayhurn/

https://bisforbananascisforcancer.wordpress.com/2014/03/18/bravo-probiotic-gcmaf-yoghurt-maf314-someone-find-me-a-camel/

GcMAF Success

The old way of making Bravo Probiotic (GcMaf yoghurt/Maf 314)

Well, I think I’m excited as I’ll ever be – the gods at Bravo Probiotic have heard my cries and come up with a new, improved version, called Easy Kit.

Like it says on the tin, Easy Kit puts the EASY back into yoghurt making.

Making the old version of Bravo Probiotic Continue reading

GcMAF at work — Bravo Probiotic — myths of the dangers of dairy products for cancer patients (a talk by Prof. Marco Ruggiero)

For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Please note:  The opinions expressed in this talk are academic considerations only and they are not intended to represent medical advice to anyone. If you need medical advice, please refer to your healthcare professional.

To listen to the talk:  https://soundcloud.com/bisforbananascisforcancer/02-12-ruggiero-gcmaf-in-action

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The GcMAF clinic in Switzeland

What is GcMAF and what is its role in cancer?

GcMAF is like a hormone, a neurotransmitter, a messenger that our body uses to promote wound repair, immunity and improve immune surveillance.

The concept of being cancer-free does not exist.  We always have cancer cells in our body, even from the moment we are born.  This is different from having a cancer that has a mass and infiltrates in our body.  The reason we do not have cancer of this sort is due to a mechanism called immuno-surveillance – the immune system is able to recognise cancer cells and destroy them.  This is called the induction of apoptosis provoked by the immune system.  But sometimes the immune system is no longer able to recognise and destroy the cancer cells and the cancer cells form a mass that we define as a tumour.

GcMAF was discovered by Prof Yamamoto in 1994.  Professor Ruggiero collaborated with him in 2010.

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Fulda 2013 conference #6: Leaky-Gut: Dietary regimen with MAP and GcMAF (Dr Florian Schilling) – also warning re. glutathione and cancer cells

ChristmasMarket6

The Christmas market at Fulda

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Updated 21 September 2014 – a reader, Yulia Dolgopolova ND Sc.D, left a comment:  apparently Vitamin D dosage depends on metabolic type.  The Sun is the best source, but it is safe to take 2000-6000 UI daily for the special health conditions (D3 solution must be organic virgin olive oil or high quality cod liver oil with low vitamin A); days ON & days OFF are essential to maintain the balance (for example, D3 for 20-25 days, then rest for 5-7 days).  An interesting book to read: Vitamin D by David Feldman et. al., 3rd edition (Amazon.com)

Florian Schilling studied pre-clinical medicine at the Ludwig-Maximillian-Universitat Munchen (LMU), and then trained as an alternative practitioner, with his own clinic since 2006, specialising in integrated and complementary tumour therapy, CFS/ME, general regulatory medicine and detoxification.  He has been a lecturer at the Paracelsus College in Munich since 2007, and lectures both in Germany and internationally.

http://www.nhz-buchloe.de/

GcMAF can be obtained from Sansei-Mirai or ImmuneBiotech.

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Leaky gut is not something I’ve considered part of my anti-cancer protocol. I’m not sure why – perhaps it’s because I’ve always had a cast iron stomach, able to eat most foods, and enjoy good digestion.  But after Florian Schilling’s talk (and a later presentation by Dr ) I’ve come to realise that just because I can digest food doesn’t mean I have a good gut – there are things happening at a molecular level that I may not be aware of, that is contributing to the environment that helped nurture the cancer.

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Fulda 2013 conference #2: GcMAF (Professor Ruggiero)

ChristmasMarket2

The Christmas Market at Fulda

 

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Updated 16 Mar 2014 re. vortex mixer

I’d previously written on GcMAF:

Supplement:  GcMAF and Supplement:  GcMAF yoghurt and my latest post, a talk given by Professor Ruggiero at the GcMAF clinic in February 2014.

Well, at the Fulda Integrative Cancer Conference 2013, I finally got to meet the famous Professor Ruggiero, who is the scientist behind the latest research on GcMAF.

(Professor Ruggiero is that rare beast, the research scientist who has also practiced as a radiologist, so he understands cancer in a way that very few pure research scientists do, having been at the coal face of cancer treatment.)

GcMAF1

image credit: copyright Prof. Ruggiero

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Fulda conference 2013 #1: Integrative cancer conference

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Updated 28 Dec 2013

Here are the highlights of the integrative cancer conference I attended on 30 November and 1 December, 2013, in Fulda, Germany.  I will be writing individual posts on each topic.

First a huge-thank you to Dr Heinz Reinwald for letting me and Peter Trayhurn attend this conference, and also for giving us his time and consideration, and a discount on the conference fees.

(I’m not sure what the practitioners made of having two patients in their midst, but we were very discrete and were there on a fact-finding mission to find out what was the latest in integrative approaches to cancer, and to suss out which were the doctors who were doing leading-edge research.)

I was impressed by the organisation of the conference.  The conference hotel was luxurious, the room was comfortable, and there were German-English translators as the majority of the talks was in German.  The food at mealtimes was fantastic, four-star buffets with plenty of ketogenic diet options.  Everyone was friendly, which was very important for me.  The quality of the speakers was excellent, world-class, and if I had the money I would go again next year.  It was a bit of a steep learning curve for me at times – if you are a patient and interested in next year’s conference, I suggest that you bone up on the causes of cancer.  If you have a degree in biochemistry that would be helpful as some of the lectures are fairly technical!

Now that I’ve been going through my notes, my overall impression is that the conference was a good mix of providing new information on approaches to cancer treatments, as well as showcasing the products of the sponsor, Dr Reinwald, in particular, Master Amino Acid Pattern (MAP) without being too much of a hard-sell.

Getting information that is not available on websites is not easy where cancer treatments are concerned – so much depends on where you are looking, and a lot of research is still not readily available.  So to be in the midst of practitioners who are sharing their knowledge, backed up by hard-core research and trials, was immensely valuable – thank you, Dr Reinwald!  And to be able to get together world-class practitioners speaks volumes for Dr Reinwald’s reputation and organisation and products.

Conference for Integrative Medicine in Fulda

ChristmasMarket1

The Christmas market at Fulda

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Supplement: Vitamin D – are you getting too much?

vitamin-d-food-sources

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Updated 21 September 2014 – a reader, Yulia Dolgopolova ND Sc.D, left a comment:  apparently Vitamin D dosage depends on metabolic type.  The Sun is the best source, but it is safe to take 2000-6000 UI daily for the special health conditions (D3 solution must be organic virgin olive oil or high quality cod liver oil with low vitamin A); days ON & days OFF are essential to maintain the balance (for example, D3 for 20-25 days, then rest for 5-7 days).  An interesting book to read: Vitamin D by David Feldman et. al., 3rd edition (Amazon.com)

Updated 4 December 2013 – if you are using GcMAF, the manufacturers recommend taking 10,000 IU of Vitamin D daily.  They also use higher levels of serum Vitamin D, much higher than the ones recommended in this post.  In Germany, some practitioners are using up to 300,000 IU per day.  This contradicts a lot of the advice on safe levels.

I started getting interested in Vitamin D because I had two Vitamin D level tests fairly close together which showed disparate results.

The first was done in the UK in December 2012.  It showed that my levels were normal.  Then a few months later, I had my levels measured at Hallwang, and it showed that my levels were deficient.  I was surprised as I had been taking Vitamin D supplements.

So it prompted the following questions:

– were the reference ranges for Vitamin D levels flawed?

– or were my levels of Vitamin D really deficient?

– or were the supplements I was taking not effective?

– or was I not getting enough Vitamin D because of the lack of sunshine in the winter?

– what was the optimum level of Vitamin D?  Was more better? – I asked an eminent oncologist this recently, and his answer did not match up to the studies I’ve been reading.  So could it be that even members of the medical profession are not aware of what is a good level of Vitamin D?

– what was an effective Vitamin D supplement?

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