Best of Breast: news for week ending 24 October 2014

News from Google Alerts for the week ending 24 October 2014, with the focus on breast cancer and cancer.

Loads of goodies this week, from an article on how disruptions to the biological clock can cause breast cancer.  (It’s not the first piece of research into this, but I thought I’d draw your attention to this because when you take your medication and supplements could be affected by the timing).

Also of interest is a cancer clinic in London set up by a leading drug developer who is recruiting patients for a trial of drugs, for whom standard treatment is not working.  From what PR material I’ve read, the group is offering drugs and treatments that are complementary to standard-of-care, including statins and metformin.  It sounds very like the protocol that Life Extension Foundation recommends.  What’s significant is that it’s the first time mainstream doctors (including a highly-reputable oncologist) are sticking their necks out to give patients more options, and it’s nice to see doctors willing to embrace knowledge and techniques that are patient-centred.

There’s also an article on the link between Vitamin D and prostate cancer, and I include this here because prostate cancer is very like hormonally-driven breast cancer.  There has been a lot of research into Vitamin D and cancer, but not many explanations on why it seems to work to help keep cancer at bay.

CircadianRhythm

image credit: student.societyforscience.org

1.  Biological clock disruptions increase breast cancer risk

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Best of Breast: news for week ending 6 June 2014

The weekly aggregation from Google Alerts, for articles on Breast Cancer and Cancer, for the week ending 6 June 2014.

ChristmasMorning

Just some of the goodies at the American Society for Clinical Oncology conference 2014

It was a bit like Christmas morning unwrapping the presents that was the American Society for Clinical Oncology’s conference that was held 2 weeks’ ago.  It’s made for an extra-long Best of Breast (which is also a week late – sorry!).

There was fantastic new research into treatment-resistant breast cancer, HER-2 positive breast cancer and TNBC; however, what stands out is the first step to developing an immunotherapy approach to breast cancer by combining cryoablation and Ipilimumab (an immune stimulant that is already being used in melanomas).  Cryoablation breaks the tumour down and Ipilimumab allows the immune system to recognise the cancer cells.

The irony is that cryoablation is something I looked into shortly after my diagnosis, but I was told by my surgeon that it wouldn’t guarantee clean margins.  Well … what surgeons also don’t tell you is that clean margins will not guarantee the cancer won’t come back.  I’ve seen people who’ve had mastectomies who’ve had with recurrences (even with radiotherapy and chemotherapy to mop up) in the scar tissue.  So clean margins my foot.  There are no guarantees with surgery, chemotherapy or radiotherapy.  The medical establishment is conservative and playing a numbers game and it’s us patients who are being kept in the dark.

I think one of the drawbacks of doing Best of Breast is that I read about all these wonderful new developments and all I can think is:  why didn’t they come up with this 2 years’ ago, or why didn’t I do this 2 years ago?  Why are my clinicians stuck in the dark ages?  And I think of all my friends who’ve passed on, and I hope that a cure comes soon for all of us with cancer.

To cheer myself up, the lead article is about the blind mole rat.  I’d posted previously about the naked mole rat which is cancer-resistant, now there’s the blind mole rat (not related!) which has the same superhuman anti-cancer properties.  Scientists have decoded its genes and discovered the secret of how it never gets cancer.  The next step is to work out how to turn us all into blind mole rats … .

BlindMoleRat

See how they run … (The furry-but-blind blind mole rat (Spalax) is a close cousin to the common house mouse.) Image credit: bbc

1.  Cancer-resistant blind mole rat gets genome sequence

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Best of Breast: news for week ending 7 March 2014

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

A weekly round-up of the news on the breast cancer and cancer front, culled from Google Alerts, for the week ending 7 March 2014.

The week started off slowly, with the usual bog-standard research on gene expression and chemotherapy.  (I had a minor panic, thinking I was going to have to invent something sensational (preferably with rats or mice)!)

Then at the end of the week, not one, not two, but THREE juicy news items suddenly appeared, all vying for pole-position.

In the end I went with the 10-minute breath test for detecting breast cancer as Number 1, because it is the answer to the squashing nightmare that is the mammogram [did you know that a mammogram applies a pressure of 20kg on the breasts?  If men had to have mammograms for their testicles, an alternative would have been found years ago!]  The incredible news is:  it’s not at the rat/mouse trial stage, it’s commercial [swoons].  I wonder how many women will have the guts to take the test though.  I have friends who would rather avoid any tests than find out they may potentially have cancer.

Item 2 is one of my favourite topics of interest, Vitamin D (and here’s my post – Vitamin D, are you getting too much?).  There is some debate on what is considered the optimal level of Vitamin D (too high and people died from diseases other than cancer), and I used to ere on the side of caution, but the GcMAF clinic (gcmaf.eu) uses up to 20,000 IU per day and once the upper limit of the reference range is reached, up to 5,000 IU.  I met a woman who had ovarian cancer and she told me that in the summer months, the shrinkage of her tumour was more than that in the winter months.  She ascribed this to the fact that there was more sunshine in the summer, and her body was able to produce the Vitamin D she needed.  Moral of the story: please supplement with Vitamin D if you have cancer.

The third item isn’t strictly about breast cancer, but it’s an amazing article about how brentuximab, a monoclonal antibody, got rid of all the tumours (70 of them) in a man with metastatic cancer – anaplastic large cell lymphoma.  The before-and-after photos are nothing short of a miracle … best of all, it’s within our reach, and offers hope to everyone with cancer.

Oh yeah … find out why you should become an astronaut if you have cancer … and another item shows that chemotherapy damages the methylation DNA of normal white blood cells, thus causing inflammation and fatigue.   To those who’ve had chemotherapy and suffered the side-effects, this study seems to be from the University of Obvious.  Now if only those brainy people who came up with the study can find a way of protecting normal cells from the side-effects of chemotherapy … .

BreathLink kit

1.  Ten-minute breath test that can detect breast cancer

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Best of Breast: news for week ending 6 December 2013

A summary of Google Alerts for the latest medical developments in breast cancer for the week ending 6 December 2013.

There are two articles this week on Vitamin D.  I’ve posted previously on Vitamin D, and originally assumed (based on the research) that deficiency in Vitamin D led to the disease – French scientists now posit that it’s the contrary – that the disease leads to the deficiency, so supplementing may not lower the risk of cancer.

I know the first article isn’t a medical development, but it’s a feel-good story.  It’s not always such a happy ending of course, pregnancy hormones can fuel cancer and there are mothers who face cancer and the cruel dilemma of having to go through cancer treatment during pregnancy.

Further down the list, a study proving that women who have abortions face a higher risk of cancer – the irony of the juxtaposition in this weeks’ round-up is not lost on me!  And finally, there are women who are using their bras as pockets for their cell phones – with obvious results.

Pregnant belly

image credit: thenakedscientists.com

1.  Mother who didn’t even know she was expecting, discovers pregnancy hormones had destroyed cancerous tumour

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Fulda conference 2013 #1: Integrative cancer conference

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Updated 28 Dec 2013

Here are the highlights of the integrative cancer conference I attended on 30 November and 1 December, 2013, in Fulda, Germany.  I will be writing individual posts on each topic.

First a huge-thank you to Dr Heinz Reinwald for letting me and Peter Trayhurn attend this conference, and also for giving us his time and consideration, and a discount on the conference fees.

(I’m not sure what the practitioners made of having two patients in their midst, but we were very discrete and were there on a fact-finding mission to find out what was the latest in integrative approaches to cancer, and to suss out which were the doctors who were doing leading-edge research.)

I was impressed by the organisation of the conference.  The conference hotel was luxurious, the room was comfortable, and there were German-English translators as the majority of the talks was in German.  The food at mealtimes was fantastic, four-star buffets with plenty of ketogenic diet options.  Everyone was friendly, which was very important for me.  The quality of the speakers was excellent, world-class, and if I had the money I would go again next year.  It was a bit of a steep learning curve for me at times – if you are a patient and interested in next year’s conference, I suggest that you bone up on the causes of cancer.  If you have a degree in biochemistry that would be helpful as some of the lectures are fairly technical!

Now that I’ve been going through my notes, my overall impression is that the conference was a good mix of providing new information on approaches to cancer treatments, as well as showcasing the products of the sponsor, Dr Reinwald, in particular, Master Amino Acid Pattern (MAP) without being too much of a hard-sell.

Getting information that is not available on websites is not easy where cancer treatments are concerned – so much depends on where you are looking, and a lot of research is still not readily available.  So to be in the midst of practitioners who are sharing their knowledge, backed up by hard-core research and trials, was immensely valuable – thank you, Dr Reinwald!  And to be able to get together world-class practitioners speaks volumes for Dr Reinwald’s reputation and organisation and products.

Conference for Integrative Medicine in Fulda

ChristmasMarket1

The Christmas market at Fulda

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Supplement: Vitamin D – are you getting too much?

vitamin-d-food-sources

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

Updated 21 September 2014 – a reader, Yulia Dolgopolova ND Sc.D, left a comment:  apparently Vitamin D dosage depends on metabolic type.  The Sun is the best source, but it is safe to take 2000-6000 UI daily for the special health conditions (D3 solution must be organic virgin olive oil or high quality cod liver oil with low vitamin A); days ON & days OFF are essential to maintain the balance (for example, D3 for 20-25 days, then rest for 5-7 days).  An interesting book to read: Vitamin D by David Feldman et. al., 3rd edition (Amazon.com)

Updated 4 December 2013 – if you are using GcMAF, the manufacturers recommend taking 10,000 IU of Vitamin D daily.  They also use higher levels of serum Vitamin D, much higher than the ones recommended in this post.  In Germany, some practitioners are using up to 300,000 IU per day.  This contradicts a lot of the advice on safe levels.

I started getting interested in Vitamin D because I had two Vitamin D level tests fairly close together which showed disparate results.

The first was done in the UK in December 2012.  It showed that my levels were normal.  Then a few months later, I had my levels measured at Hallwang, and it showed that my levels were deficient.  I was surprised as I had been taking Vitamin D supplements.

So it prompted the following questions:

– were the reference ranges for Vitamin D levels flawed?

– or were my levels of Vitamin D really deficient?

– or were the supplements I was taking not effective?

– or was I not getting enough Vitamin D because of the lack of sunshine in the winter?

– what was the optimum level of Vitamin D?  Was more better? – I asked an eminent oncologist this recently, and his answer did not match up to the studies I’ve been reading.  So could it be that even members of the medical profession are not aware of what is a good level of Vitamin D?

– what was an effective Vitamin D supplement?

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Best of Breast: news for week ending 25 October 2013

A sweep of the latest medical developments in breast cancer from Google Alerts, for the week ending 25 October 2013.

[Google Alerts is currently top-heavy on the fund-raising and charity events as it’s Breast Cancer Awareness month, including pinkwashing news about a tweeting bra – I kid you not!  

So if I’ve missed something out, my apologies. Please post any new developments that I’ve missed out in the comments box and I’ll be glad to include them in the compilation, and include an acknowledgement of your contribution.]

vitamin-d-sunshine

Photo credit: vitaminandweightloss.net

1.  Poor Breast Cancer Prognosis Associated With Low Vitamin D Levels

(This statement is nothing new, but I put it at No. 1 because it meant a happy photo.)  There have been loads of studies done on Vitamin D, the sunshine vitamin, and cancer.  The question is:  what is an optimal level of Vitamin D?  Too much can lead to death from other causes instead of cancer – imagine the irony!  I’m in the process of writing a post “Vitamin D – are you getting too much?”

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Best of Breast: news for week ending 30 Aug 2013

Here are the highlights of what this week had to offer on the latest developments and news about cancer treatments.

TOP STORY OF THE WEEK

Pet dog saves owner’s life after sniffing out her breast cancer

brown-spaniel

Dog Scan – the latest tool in the early detection of breast cancer (photo credit: http://www.mans-best-friend.org.uk)

My absolute top favourite of this week is a story of a woman whose dog sniffed out her breast tumour.  I love it because in an age where cancer detection is carried out with high-tech devices like Pet scans and ultrasound, and costs a fortune, along comes Daisy the spaniel, who nose trumps technology.  We’ve heard of CAT scans, now here comes a DOG scan!  It’s not the first time a dog has detected cancer in its owner, of course.  It just makes me wonder why there aren’t a trained posse of dogs in every hospital to help in early cancer detection.

http://www.mirror.co.uk/news/uk-news/pet-dog-saves-owners-life-2217465

2.  School-age drinking increases risk of breast cancer

I can’t see this stopping teenage girls from drinking, can you?  When you’re young, you think you’re invincible and believe that cancer is a disease of the old.

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Supplement: GcMAF

Macrophage1

Macrophage eating cancer cell (photo from http://www.gcmaf.eu/info/)

Updated March 2016 – For more information on GcMAF, please join the GcMAF and GcMAF Cancer forums on Facebook – they are closed groups, so you have to wait for your membership to be confirmed.  They contain up-to-date information on sources of GcMAF, and also feedback and contributions  by people who are using GcMAF.

this post has helped you, please would you help me?  I am now fundraising for cancer treatments at GoFundMe http://www.gofundme.com/78jh2w or at JustGiving:  https://www.justgiving.com/goBananasforRona

JustGiving - Sponsor me now!

[update 7 Dec 2013 – see post on Fulda integrative conference on possible reason why GcMAF did not work for me]

Updated 22 Feb 2014:  please note that the process for culturing Maf314 is different from Bravo Probiotic.  I suggest that if you want to do it properly, that you buy a fresh set of cultures from Bravo as only they can guarantee the activity of the cultures.  Compound 1 must be cultured afresh from powder each time.  Compound 2 can be re-propagated from the existing culture. 

When I was trying to find another weapon to beat the cancer, I used GcMAF for about three months.

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